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Metastatic cancer patient survey: Access to cancer support services Humber and North Yorkshire Cancer Alliance would like people living with metastatic cancer and their loved ones to tell us about their experiences of accessing cancer support services in Humber and North Yorkshire. We will be asking questions about the information and support you've received and what support you would find helpful as a person with metastatic cancer.

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Survey Closes 12 May 2025

1. Were you told you had a primary cancer before being told about your metastatic cancer?

Yes No

2. What type of primary cancer did you have?

Only applicable if you answered YES to Question 1

3. When were you told about your metastatic cancer?

Please give approximate date.

4. Which hospital or care setting told you about your primary and/or metastatic cancer?

	Primary Cancer	Metastatic Cancer	N/A
York Hospital	Primary Cancer	Metastatic Cancer	N/A

Scarborough Hospital	Primary Cancer	Metastatic Cancer	N/A

Hull Royal Infirmary	Primary Cancer	Metastatic Cancer	N/A

Castle Hill Hospital	Primary Cancer	Metastatic Cancer	N/A

Scunthorpe General	Primary Cancer	Metastatic Cancer	N/A

Diana, Princess of Wales Hospital, Grimsby	Primary Cancer	Metastatic Cancer	N/A

Goole and District Hospital	Primary Cancer	Metastatic Cancer	N/A

Malton Hospital	Primary Cancer	Metastatic Cancer	N/A

GP	Primary Cancer	Metastatic Cancer	N/A

5. Which of the following best describes you?

I am due to start cancer treatment I am receiving cancer treatment I am no longer receiving cancer treatment Other

Mandatory

Please advise what stage of treatment/ care you are currently at

6. Has the information and support you've been given been

	Always	Often	Sometimes	Rarely	Never
At the right time in your pathway	Always	Often	Sometimes	Rarely	Never

The right amount of information provided	Always	Often	Sometimes	Rarely	Never

The right level of understanding	Always	Often	Sometimes	Rarely	Never

The right format	Always	Often	Sometimes	Rarely	Never

7. Would you like to share any other comments about the information and support you have received since being told you have metastatic cancer?

8. Do you know where to go to get advice and information about your treatment, support and self help?

Yes No

9. Are there any elements of the information and support you've received so far that has worked well for you?

10. Where do you think improvements could be made to the information and support you have received?

11. Were you told about your primary and metastatic cancer at the same time?

Yes No

12. How has the information and support you have received since being told about your metastatic cancer compared to when you were first told you had cancer?

Only applicable if you had a primary diagnosis before a metastatic cancer diagnosis

Better Same Worse Don't know Not applicable

13. Do you have regular contact with your Cancer Nurse Specialist (CNS) team?

Yes No Not sure

14. Do you have regular contact with your Oncologist?

Yes No

15. Have you been given the chance to talk about your non-medical needs with a member of your care team?

Yes No Not sure

16. Have you received any information about health and wellbeing support?

Yes No

17. Have you or your partner/support person received support from any of the following?

Please select all that apply.

18. Have you received any support from any of the following community services?

Please select all that apply.

National charity information Local support groups Local voluntary organisations One to one peer support Buddy system (where you could meet or talk to people who have had a similar diagnosis) Support in the local community (such as via GP or community service) Other Please specify

19. Please use this space to tell us about anything else you'd like us to know about your experience of support in living with metastatic cancer from your GP surgery, hospital, community organisations, charities or any other sources.

20. Please select below if you would be happy to be contacted for the following reasons

If you are happy to be contacted for either of the following reasons, please leave your contact details on the next page. We will not use your personal data to identify your responses, all responses will be anonymised. Any personal information you provide will be used to contact you if you wish, and deleted once the project has completed.

So we can find out more about your experience So we can inform you of the results of the survey I do not wish to be contacted

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